Well, at least they knew what they were doing. Did you get a copy of the ABG or other tests? If not, you may want to. Some ER docs, even some neuros, don't "get" that an ABG showing "hyperventilation" does not mean that someone has anxiety but is in the process of their MG going downhill. They may think the test is "normal" when it really isn't. They should fax the results to your neuro so he can say whether they are truly normal or not. And O2 stats drop late in the game. Did they check your stats when you walked around? If not, they need to do that next time if they look normal. MG gets worse upon exertion!

I'm saying this because what you are describing sounds like you are on the verge of a crisis. You have to be very careful right now. If you have any episode where it feels like you are suddenly short of breath, that's a warning sign. So are the cramping and spasming of chest wall muscles.

Did they do any breathing tests? MIP and MEP? Those are almost more telling when you are that bad. My pulmonologist has standing orders for those to be done when I get worse. Do you have a pulmy?

You need to rest/sleep as much as you can. You do not want to end up in the hospital. It takes a lot longer to recover once you have a crisis - have you ever had one?

Seriously, don't do anything unless you absolutely have to. I would even recommend staying in bed for a couple days. I know you are a Mom and that is almost impossible but maybe the kids will see it as fun. You know, bringing Mom stuff in bed. Kids do like to be helpful!

Annie