Yeah, I know exactly what you mean ... there has really been NO way to share news about this subject here, without the defensiveness.
While I do not agree with the reason Biogen has chosen to not continue to share this information publically, personally I am happy that it has gone away. So long as I knew, I felt I had to keep updating or correcting on bogus information that was being shared. Now there will be no more opportunity for comments like " but X was from Germany" or "I heard Y was doing Z before T" ... .. and I am happy about that.
Unless it's in print from the FDA, I wouldn't believe anything we get second-hand from someone's neurologist either ...
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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