Thanks for that.
I think it was you that said ( if Im not I aplogise to the person that said it) "Drs are the only profession in the world where they can say I don't know and walk away from a patient and still draw a pay check" (Im paraphrasing). Its become one of my dads favourite sayings. Im incredulous to understand why Im being treated this way and horrified to learn that Im not alone.
I went onto the site that you posted the link for. They are so thorough going through your familiy tree etc and taking an acurate history. Plus seeing a cardiologist etc. Ive never seen one. The pulmanologist is the one that told me I could be a free diver as I could hold my breath for so long LOL!!
My parents are staying close by for a couple of days so I will talk to them about it. I will certainly e-mail the guy to see if he can help me.
Thanks again
Love
Rach