Hi Alison,
I am going to scan the article for you to see the pictures and the full article. I see that you received the RSD email. Would you still like the full article emailed to you?
On another note, my daughter finished the 3 day 4 hour infusions yesterday with Dr. Kirkpatrick and went for the post infusion visit today. Her pain thresh holds have improved immensly. She slept for 8-10 hours each night this week, something she hasn't done for years, she is laughing and it is unbelievable. I will say that the infusions were rough. She went into the dis-associative state of mind and as a mom it was scary. She panicked several times, did not have hallusionation, they say children normally don't.
I know that I have no idea what kind of pain all of you are going through, but I watch my daughter everyday in this pain. I would do anything to help her take this pain away. I would take it from her.
I have seen first hand these infusions work. My daughter is 16 years old and has been dealing with this pain since she was 11, I know what the doctors think, and I know what they say. I know how frustrating it can be to have someone tell your pain is not real.
I live in Tampa, Florida. So if you need any information on the RSD Institute just PM me and I will get it for you.
My prayers are with all of you...
Sandy
Quote:
Originally Posted by ali12
Thank you Sandy, I would really appreciate it if you could send me a copy via email when the magazine comes out - i'll PM you my email address  ! I did a quick look on the internet to see if People Magazine was available over here and it didn't come up with any results so i'm guessing it isn't.
I'm SO glad to hear that your daughter has got some pain relief from the infusions - that is great and I really hope she gets even more pain relief as time goes on!  I wish they did Ketamine infusions over here but they don't. I take oral Ketamine when i'm in a really bad pain flare and it reduces my pain levels a bit though it isn't a lot. My doctor did a Ketamine epidural last year and it cut my pain levels in half for 6 hours but he isn't willing to do it again for some reason!!
Please pass on my love to your daughter and give her a hug from me!
Thanks again,
Alison |