Thread: another FNG
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Old 07-31-2009, 03:16 PM
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KathyV KathyV is offline
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Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
15 yr Member
KathyV KathyV is offline
Member
KathyV's Avatar
 
Join Date: Jul 2009
Location: Cincinnati, Ohio
Posts: 102
15 yr Member
Smile Back at ya

Hi Motorhead,

I see you posted on my noob thread, so I'm doing the same. We're about the same age, but looks like I was diagnosed a lot sooner. Within 1 month of ptosis and double vision. Neuro opthamalogist suspected it and had me get the blood test which showed positive for acr antibody. Just had CT scan which shows englarged/growth on thymus.

The neuro put me on Pred (40mg) and Mestinon (60mg 3 times/day) which have just about "cured" the eye problems, which is all I had. Have just been on them for a little over a week. No side effects so far, but I really hope he reduces the Pred before they start. The best part is being able to drive again. Couldn't do that for about 2 weeks without closing my right eye so I stayed off the road. Luckily I don't work so that was not an issue. Husband just had to chaffeur me around.

Hang in there. That's all we can do, right.
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(Broken Wings) (08-01-2009)