Hello Sandy,
I'm glad your daughter responded well to the infusions. I did them in 2007 and I need higher doses so the coma was offered to me in July of 2008.
I have turned it down for now. I am not comfortable with what Dr. Schwartzman from Drexel shared with me about the possible outcome. I have RSD full body with organ involment and he said there was a 50/50 chance it would or wouldn't help me. Due to it being full body he wasn't very hopeful it would help (I respect him for being honest). However, we all respond differently to treatments (that always gets thrown in)
I hope your daugher continues to improve.
Take care,
Sherrie