Kathy., the mestinon gave me so much extra mucous it affected my asthma terrible and all I did was cough and my chest got very congested and also the palms of my hands were hot and my lips itchy. The prednisone made me swelled terrible and then all my lymph nodes swelled. I live in Salem , ohio., close to East Liverpool , The neurologist specializes in MG, and is in youngstown ohio. Take care and keep us informed.
Nancy
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Originally Posted by KathyV
Nancy,
I can't believe the similarities between us. I'll be 57 in October and live in Ohio (Cincinnati area). What part of Ohio do you live in?
I've only been taking the Prednisone and Mestinon for 9 days now -- both are generic which saves me on the co-pays. Other than I seem to sweat more (which I never really did before), I haven't noticed any side effects. What problems did you have with the Mestinon?
I'm going to a regular neuro -- didn't realize there was a MG specialist. Have you had a CT scan to check your thymus. Mine showed abnormal with a 4cm "growth." Next appointment with the neuro is 8/19 and then I'll see what he wants to do about that.
In the meantime, I'm just about 100% with the vision and feeling fine. Hope I don't jinx myself. 
Have a great weekend.
Kathy |