Thanks, Tbarney, suev and Rach! It does suck a bit that I'm in the hospital...But I feel a bit safer here and like things are being taken care of better now that I'm here...I'm glad that they started me on prednisone....I was worried that I'd get all of the bad side-effects, but so far, so good...They wanted to monitor me while I'm taking prednisone to make sure things don't get bad, which again, makes me feel a lot safer...
I think it's so crazy that I came across these people, since MG is so rare...Maybe it's more common than we think, or maybe the stars aligned in such a way that allowed me to see that things can definately get a lot better!
The docs. are still perplexed as to why I'm always gasping for air while talking...My FVC is awesome, actually over 100%, and my saturation is usually 100% as well...I definately feel like I can't breathe often, though, especially when I'm talking for some reason...Hopefully, once the prednisone and plasma exchanges really set in, that'll improve...Just wondering, though...Do any of you guys feel like you have difficulty breathing when you're having slurred/nasal speech and/or difficulty swallowing, but it turns out that you FVC is fine? I came across on article in CHEST journal and was thinking of relaying it to my doctors, but I'm thinking they might get annoyed...Sometimes, I feel as though I come off as having too much information, or like I'm trying to one-up them...That head neurologist guy sarcastically asked me where I got my degree from when I said that I think it's good to get plasma exchange before starting prednisone :S...He's kinda cold, so I'm keeping my mouth shut from now on...
here's the link from the CHEST journal
http://www.chestjournal.org/content/109/2/400.full.pdf
Thanks, guys!