Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Nicky, Did they do MIP or MEP? Sometimes FVC can be completely normal but it's the MIP and MEP that totally suck. They SHOULD do those. During my crisis, my FEV/FVC went down, total lung capacity went down but didn't look horrid. My MIP and MEP, and arterial blood gas to a lesser degree, however, did not look good at all! The ABG can show hyperventilation, which does not mean you are anxious! That's what happens right before a crisis.
Oxygen stats fall late in the game with MG. Did they check your O2 stats while you were just sitting there or while you were walking? It makes a big difference. My pulmy always has me "go for a walk" with the oximeter on.
I'm sorry you are back in but glad the tumor was one where you don't have to have chemo, etc. I'd still get a 2nd opinion about that though. Always get a 2nd opinion on tumors. Get the slides sent to someone.
Make sure they do a D-Dimer to make sure you don't have a pulmonary embolism!! They may have already done that but it can make you "gasp for air" too.
I hope you are better very soon!!!
Annie
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