Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hi Motorhead
Welcome to the group. Its a good place to ask questions and learn from other peoples experiences.
The frustrating thing about MG is you can't predict it, it has a nasty habit of bitting you on the bum if you try to!
I can wake up in the morning feeling wonderful able to move around etc and then a few hours later have bilateral or unilateral ptosis and breathing problems. I think the best thing to remember is if it starts acting up STOP, and rest. You have to listen to your body. And Im a fine one to talk!LOL
I hope you are coping with the meds ok.
Love
Rach
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