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Elder
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Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
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Elder
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
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Quote:
Originally Posted by shelmora
Hey Dew do you know of a person with RSD in their feet and legs that would ever put themselves in a pair of hiking boots and jeans?
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I can't speak for Dew...
I can only speak for myself....
FIRST... I understand and appreciate your wanting to help others with RSD. It is a terrible monster that we are fighting.
SECOND ... Please remember that there are no 2 people who are fighting RSD that are the same. We don't have the same exact symptoms. No two of us react the same to medicines, therapies, or any other thing out there that is used to lessen our pain.
I have had RSD 5+ years....Started in my foot and within 5 months it had spread full body. Organ involvement began about a year later. NO... I did not self diagnose...why would I want to... I wanted to deny it was spreading... I WANT THIS MONSTER TO GO AWAY.
I have seen 9 doctors (mostly specialists) who all have diagnosed RSD and confirmed its spread.
My legs stay a constant DARK Maroon/Purple.
I wore jeans before and continue to wear them today... my physical therapists and doctors have told me that they believe it is best FOR ME to keep wearing what I was used to as it would desensitize my legs. Sure it hurts... but other materials feel worse on my legs than my jeans. I can't wear shorts as the air hitting my legs feel worse than my jeans.
As far as shoes... I have wore hiking boots since RSD. I have a very light weight pair... I dearly pay for even putting them on and take them off as soon as I get back inside. But I can't go outside in the winter in the snow wearing my Crocs. If I have shoes on I wear the soft fuzzy lined Crocs. They are light weight and hurt less than any other shoes I've tried.
As far as Work Comp goes... I was injured by a coworker through no fault of my own. I had to fight work comp to get a settlement so that I could pay my doctors who so graciously continued to treat me while I was dealing with all of the WC stuff. My settlement was just enough to cover medical expenses that I incured while waiting on a settlement.. I recevied $0...not one penny went in my pocket. Then again... I didn't want the money... I WANT MY LIFE BACK!!!
Work Comp is different in every state and every country.
I sincerely wish you the best.
Abbie
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My avatar pic is my beautiful niece Ashley!
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Rest in Peace 3/8/90 ~~ 4/2/12
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