Hi, MH. Do you have a more informal name?

Good advice, Maurice.

This isn't really "alternative"medicine but I guess it's more like "foreign" medicine to some docs. Did your neuro say to take calcium and vitamin D while on Pred, to stay away from sodium and to add in omega 3's?

The problem, as you well know, with MG is that it is so damn unpredictable. Even when I think I'll be okay doing something, I can get much worse. It's the worse part of this disease, other than the not being able to do what I want to.

Do you work outside on your truck and doing contracting? The heat will make things worse.

I wish they did have more meds with fewer side effects. I have hope that they will get those drugs to the market. The problem was that the development of Monarsen changed hands midstream and so they have had catchup work to do.

Annie