New Member
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Join Date: Jun 2009
Posts: 3
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New Member
Join Date: Jun 2009
Posts: 3
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Okay I see that I've stirred up some feelings here and I can see some of you have taken what I've said in the wrong way or maybe I didn't make myself clear. First off let me say that when someone with RSD only cares about what WC is going to give them money wise I have to wonder what is truly their motive. I had one person tell me that they believed because they couldn't work anymore WC owed them a house and should buy them one, you are forgetting that I have talked with some of these people personally and when someone finds out that they could have asked for help in the home but didn't then expects that WC back pay them for it doesn't make me feel as though they are out to get better.
Before I pass judgement on anyone and believe me when I say I know we all suffer in different ways and not all of us have the same symptoms but i do ask my RSD specialists (and more than 1) questions before I "Shoot" my mouth off. You are forgetting that these are not my opinions but the opinions of RSD doctors so are they "WRONG" ? I have written to Dr. Schwartzman with many questions and I cannot believe that a doctor such as him who has been treating RSD for many years (over 30) can be so wrong with his clinical impressions and survey's (of course it depends on people telling the god's honest truth about their condition). If I took the time to write all the stuff here that I've been told and posted a few letters I have received over the years then you can only ask yourself one thing and that is " Do people really tell the whole truth".
One thing I can say is never in 17 yrs have I told a lie about the status of my condition or the severity of it. If you had talked with some of the people I have who claim to be a severe case and saw the inconsistencies coming from their mouths and out right lies then maybe you would cut me some slack here.
So the question I have is why are some of you so against what I've said when its you the real sufferers that I'm defending here. Doesn't it make you mad to know that people are out there claiming to be full-body when they don't have a doctor's diagnoses to say that. Again pain by itsself is not enough to say its RSD spread.
By the way a huge "THANKS MIKE" for standing up for what I said its nice to see that someone else goes by what an RSD educated doctor says. Not to forget RSD Hope and the RSDSA Assocation. I was asked by one person claiming to have RSD if I could write them a personal story about life with RSD, yes they were trying to get a pension through the government. Never would I dream of having to ask another person to write my story I've lived a life of pure hell here my words could make someone pretty educated on what life with RSD is like. Why would someone ask for your personal story or to ask that you write one, well I can see only one reason so they know what to say or what symptoms to say are happening to them. So again you guys please understand that I have seen for my very own eyes and ears that people are scamming.
Let me end by asking this, if you where talking with another (RSDer ??) and you have had the disease for many many years and they for only a very few and you tell them about a symptom they didn't know about then a week later they had the very samething happening to them---hmmm???? and this happened over and over again wouldn't you be questioning what they were up to even more so when no doctor believes there's really any thing wrong with them and that's out of their own mouth. Not to forget this last thing but when i'm being told that they are cheating WC and yes those words came right out of the person's mouth then what i'm supposed to think?
So can you guys please cut me some slack here it just makes me so angry when people are claiming to have things happening to them that are false in the biggest of ways. Again I wouldn't say this lightly, I've heard it straight from those " horses mouths" so to speak. I can prove everything I say about my RSD condition can they??.
Just know that the scammers are out there and they are only interested in money or early retirement and yes its those people who make it hard for the honest ones to get timely treatment or to be treated fairly by the WC's, WCB's and all other insurance companies. Yes this is where my anger lies and how could you blame me for wanting to defend those of us who truly do suffer this horrible painful disease. Don't fool yourself to think they aren't out there.
I will end for the second time...lol..by saying thanks Woodsman for your kind words and support I know what you suffer with and my heart goes out to you as always, you are a true and valued long time RSDer that I admire with my whole heart and love of course. I know you've studied RSD long and hard and i've always respected your input as to what RSD is all about. Sending you a big but gentle hug.
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