ok like always here of late i am late on this thread. ! sorry..

first of to nancy yes rsd can and will do what it wants when it wants period. and i hope that you are able to get it under control. i know how scary it can be and we all know that we sure as crap dont want it to spread. period..

shelmora i can agree with what you are saying about people scamming the system drs etc. but i think that the problem that people are having here is that you popped in and where very adiment with the post that you were writing . this in no way me beng rude or disrepectful. like you i also suffer from severe rsd since i was 16 . and have documented proof that i have full body and organ involvement and have been treated by very well respected RSD drs.

we are a very close community here and are very protective of "outsiders" (this is to be viewed loosely ) that come and and make harsh statements. that is why most are reacting the way that they are. also we all are aware of people that scam for all kinds of reasons we see this all the time.

i bet you are a very caring person. as are we. we know what it is like to have to suffer with this horrible monster and pray to god that there will be a cure someday .. please know that i was just stating my Opinion .. i am sorry if i came across brash this is solely the way that i am.


hang in there nancy!!!

carrie