Thread: Plasma Pheresis
View Single Post
Old 08-05-2009, 08:53 AM
Ziggy7 Ziggy7 is offline
Junior Member
 
Join Date: May 2009
Location: Europe!
Posts: 48
15 yr Member
Ziggy7 Ziggy7 is offline
Junior Member
 
Join Date: May 2009
Location: Europe!
Posts: 48
15 yr Member
Default

Hey there,

I had a cycle of plasmapheresis (not for mg) during a major thrombotic storm about two years ago. The first seven rounds were an inpatient procedure for me as I was in intensive care and it definitely made a huge difference for me, as it was the only thing that stopped the c-aps from killing me. I had one round every two days with constant steroid, heparin and ivig drips in between and after the first seven rounds I was released, had a round of cytoxan a week later and two more rounds of plasmapheresis. I had a central line placed for the whole thing and although that wasn't a pleasant thing to have, it was a blessing to not have nurses and docs trying for hours to find a vein that wasn't sclerosed and/or hiding and that they could use for the actual procedure.

Only problem I had during the whole thing was that I got a bad transfusion reaction from the plasma shortly after the third or fourth session with chills, fever, really low blood pressure and major hemolysis so I got albumin instead of plasma after that.

I think plasma exchange is a last bullet kind of deal for most diseases but it can be incredibly effective, at least in my experience! Hope it goes well for you and that it helps your MG!

Ziggy
Ziggy7 is offline   Reply With QuoteReply With Quote