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Old 08-05-2009, 11:13 AM
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Becca44 Becca44 is offline
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Join Date: May 2007
Location: Minnesota
Posts: 335
15 yr Member
Becca44 Becca44 is offline
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Becca44's Avatar
 
Join Date: May 2007
Location: Minnesota
Posts: 335
15 yr Member
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I like that bgb: there is no wrong choice.

And sometimes, unfortunately, there's no big neon sign (or burning bush) pointing us in the direction of the right choice.

For a girl with little tolerance for ambiguity when it comes to my health, this has been a hard reality to deal with. Nevertheless, having gone through a similar (but not identical) situation to yours Dejibo, I ultimately decided to stop taking Copaxone.

That said, in order to do that I chose to except the premise (and here's the ambiguous part and something for which I have no proof 'for' or 'against') that the ultimate course of my MS was not being significantly altered by any medication.

In other words, the medication - although possibly limiting the duration and severity of my exacerbations - was not in fact, changing the 'outcome' of my disease.

That was somewhat 'easy' to do considering I was having zero exacerbations. Did it make sense to take a medication to reduce the frequencey and severity of something that wasn't happening in the first place?

Next, I had to assess how I felt about my MRI scans. I may not have been having any symptoms or exacerbations, but there sure were new and old lesions on my MRI. The next question for me was:
What's more important to you? How you feel ...or how your MRI scan looks?

The answer to that question is different for everyone and rightfully so.
I have a doctor and neurologist who are open to the philosophy of 'treat the patient, not the MRI', but who would also support a patient's request for meds even if that patient was experiencing difficult (non life threatening) side effects.

I chose to focus on how I feel, and to no longer undergo MRIs until such time as something changes. For now, I'm med free and experiencing no symptoms or exacerbations. Some say that's unwise, others totally get it, my family and caregivers support it. It could change.

There is no one solution to our approach to wellbeing. A feeling of wellbeing is multifaceted, it's never about just one thing. And each of us should feel free to change course at any point - focusing on what we need to get through our days.

Whatever you do, hopefully people will support whatever logic you employ to arrive at your decision and whatever rationale you employ to keep you on the track you've chosen. This is a complex issue with varying opinions, numerous influences, an assortment of players and stats and on and on.

Take care!!
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"Thanks for this!" says:
braingonebad (08-05-2009), Dejibo (08-05-2009), dmplaura (08-05-2009), Kitty (08-05-2009), Lady (08-06-2009), SallyC (08-05-2009)