Quote:
Originally Posted by loretta
Hi SunshineGirl,
I'm sorry you are feeling so ill. Flares are not good. I have full body or generalized as a neurologist called it. When I am in a flare, I run a low grade fevor, have intense burning in feet, legs, hands up my arms, The color is intense, red, blue, mottled. The pain is heightened and consumes my thinking, difficult to get my mind off my body. I stay in bed, and it's even difficult to walk to restroom or kitchen. I get scared of passing out, which I did once. I get severe headaches, and sometimes break out in red dots that are painful to touch. I also, like yourself, have an appetite change, not hungry. I've lost permanently appetite things I used to enjoy eating-am a vegetarian now with exception of occassional bite of salmon or fish. coffee, etc. low energy, tearful, depression increases. Hope this helps. Take care of yourself, your friend, loretta
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All the symptoms you all are describing are right
on except I don't have the intense burning like u guys or alot of swelling, minimal swelling.. I just went monday to a nephrologist for more tests on kidneys they ran blood again urine and a ultrasound on my kidneys and said they would give me the results in 1 month.. I can't believe I have to wait for results that long.. Any how I just think of the the 12 hour days that I work and just wearing shoes that long just kills me and I am getting worse I can feel it.. Sometimes I feel so bad I just stay in bed and do the bear minimum like maybe a load of clothes for a whole weekend..Can't even get up the energy to pay bills. And I usually feel nauseated almost all the time now. So the docs have me running around thinking all sorts of things.. I have 4 doctors and none of them every get together and decide what they can do to help me get better.. (1 heart 1 nephrologist 1 pm doc and 1 gp doc) All this money going out of my pocket and insurance paying and still don't know anything. Maybe it just takes along time.. to get everything diagnosed. Thanks Girls for the help