I wish there was a "right" answer. I wish someone could say "Hey! Copaxone treats todays sx and has a 51% chance of preventing relapses, and ya know what, if you do have a relapse it makes it 50% less severe than if you were not using this med!" isnt that great?!
The best I can get is "these are the tools we have available, and we want to keep you as healthy as possible, so when the real tx comes along, you are not so disabled you dont qualify to use it." What kinda horse puckey answer is that?! Copaxone has a 33% chance of helping to prevent the next relapse, and if you have a relapse it has about a 30% chance of helping you recover faster, and decrease the chance of permanent disability. I dont have revolving flairs. I have one every couple of years, and then its a drag foot, and a blinky eye.
If it wasnt for the optic nerve thing, I would have laid it down. That is scary to me. I dont want to risk my eyesight. I also dont want night sweats, and sleepless nights with rashy skin and eyes so dry I cant blink.
I just feel like I am darned if I do, and I am darned if I dont. Everyone keeps saying the same thing "there is no right answer." it was the same way when I had to pick a DMD. "there is no right drug."
Can you tell I am moody? I am feeling a bit cornered, and I am upset that I dont feel my opinion was wieghed before decisions were made for me. I get it, I understand it, but that doesnt mean I have to like it. With the help of my MS nurse, I am combing through stats, and my medical records to better weigh the equation to come to MY choice.
I feel trapped either way. I dont want to keep taking it, but I dont want to stop. Does that make sense?