Thank you for the comfortable, thorough, and easy to understand post. It seems to me that we don't have serious differences of opinion on this; we are just coming from different perspectives.

Some of us, as patient advocates, have worked toward improving clinical trials and recruiting for them, specifically for pd. We feel that patients should be at the table when it is decided what to research and during trial design....throughout the entire process. This document was written by patients and the Parkinson Disease Foundation.

http://www.pdpipeline.org/advocacy/rights.htm

Communication leads to trust. Thanks for responding in the spirit of learning.
paula