Quote:
Originally Posted by DianaA
Hi Sunshine! I am sorry you are not doing so well. As you know I have had RSD since 1989, now full body. I can only speak for myself, but a flare for me includes all tmy symptoms at an increased intensity. To the point that I can't lay down or sit and just stand by my bed without clothing and wonder what the **** I am going to do!
Symptoms: Intense burning pain (with these triple digit temps the a/c and fans make the cold breezes blowing over my body just instenify the burn not cool me down.)
Weakness  feels like my limbs will simply fall from my body) Its is a very strange and almost unbearable sensation.
Spasms and contractions: The right side of my ribs (which literally take my breath away and keep my from moving) and my extremities. Servere contractions of calve muscles and spasms in hips.
Red and mottled skin: I have almost a rash type redness throughout my chest, shoulders and down my arms. My Legs and hands become very dark purple and mottled.
Aching Pain: It feels like bone pain. Deep and almost a crushing pain as if a heavy object were on top of me. (Think train wreck)
Pin Pricks: Like being bitten by bugs everywhere. Extremely annoying.
Swelling: This causes limited range of motion for me.
Nausea: This stems from the extreme pain. Also from a total feeling of lack of control.
There are a few more symtoms but these are the worst for me. It is just painful to move. I dread taking my feet from the bed to the floor. Each step is painful! My flares can last up to ten days. There are many thing I have to do make this peroid easier but I'll leave that for another post.
Hope this help. I had to do this in a hurry. Hugs Di
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Any
help u can give me di would be appreciated... I kept wondering why I was so nauseated.. Been trying to loose some weight but every time I cut back I get nauseated but like u said I think it is being out of control and being in that much pain?? How do u keep yourself from feeling guilty of not being able to do the things u used to do for your family etc and household chores.. I am just barely hanging onto my job for now.. not much done at home though..