Quote:
Originally Posted by kokopup
I'm here to try to find information to help me cope with numerous neuropathies that are the results of Chemo/radiation treatment for base of
tongue cancer that was completed 5 years ago. Some of my neuropathies
came about immediately after treatment and others have occured over time
from fibrosis cutting off blood supplies to different nerve groups. The two that cause the most pain is Brachial Plexopathy and neuropathy in my feet.
I am currently getting desparate because the neurontin that was helping some is not doing the job and I am becoming a zombie because I am not getting much sleep mainly because of my feet burning and hurting at night. I hope that I can find some information on this forum that will help give me some relief. When I talk to my doctors about my distress I might as well be talking to my Puppy Koko. I get reassuring looks but that is all.
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Koko. I'm not sure that I'll be much help I've had peripheral neuropathy for six years and it's been getting worse over the last year. I take 3600 mg. of neurontin each day and sometimes 50 -100 mg of tramadol in the evening (It makes me real tired). I sleep OK, with the help of 2.5 mg of xanax, but the pain in my feet has completely changes my life. I can't walk very far (Just enough to do quick shopping trips, etc.) or stand in line for more than a few minutes. I've taken a dozen other medications but the neurontin seems the best. I don't know what others do after their doctors think they should go beyond neurontin. A friend of mine's dad (in his late 70's)has neuropathy and loves the oxycontin that his doctor perscribes. Will your doctor give you something to help you sleep?