Quote:
Originally Posted by SallyC
I take it you are an AB lover/user?? I do think that ABs help slow some types of MS, just not all types .
We need to learn more about what causes our individual MS, in order to find the proper treatment, don't you think?
Thanks for your input.  |
Sally,
IMHO, I see the 2 paths in MS - 1) I see folks listening to the neurologist, selecting from the NTCRAB's and hoping they don't get worse anytime soon. 2) I see folks listening to the neurologist, assessing the limitations on the neurologist and setting out to find out what the neurologist can't tell you.
ABX falls within #2. It's off label. So are statins, provigil, stents, LDN and a whole host of other things. I don't know so much about those things, but I know folks are doing them and often swear by them.
Kim used to fall into the #1 group. MS was like a dark cloud. We'd go through our days, weeks and months with this sense of hope that tomorrow wouldn't be the day Kim's legs got numbness signalling an exaserbation. Now, this worry is gone. Moreso, we have a brighter outlook, looking forward to the next day that some MS related disability will be overcome somemore. So we used to hope that it wouldn't get worse, now we hope we see improvements sooner.
As I see it, one has to decide to be a #2. I'm not talking about choosing which supplement to take, I'm talking about seizing control of your illness from your neuro. Kim has done this, others have done this, but it requires a tremendous amount of personal responsibility to do this. You have to know what you're doing and why your doing it. I have spent the last 2 years reading reams of medical journal articles. It is an investment of time to decide you're going to know more about some facet of MS than your neuro, but you can, if you really want to. But, Kim didn't have to wait for the FDA to approve anything and we don't have to buy bulk pee-pads anymore.
There are some simple ways to explore whether antibiotics might be worth looking at. For example, if one takes NAC for a few days, gets flu-like symptoms, it would be a pretty good idea to learn more about this approach to MS.
Sally, you said "In order to find the proper treatment". No one knows what the proper treatment is for everyone, but that's not going to prevent us from making educated guesses about things. The alternative isn't very pretty. Ken