Allen, I am so sorry (no pity intended) that MG is affecting your life in such a big way. It doesn't exactly help to know that it does that to the majority of us.

I go through a lot of anger phases. I hate that this stupid disease has gotten in the way of so many things I love to do. And it gets in the way of the little things I used to take for granted, like just sitting.

When I got sick, I sought out a psychologist who was an expert at helping people cope with diseases. She gave me a lot of coping tips that really do help. But the bottom line is that MG is just damn hard. You don't know from day to day how bad you will be doing. And I agree, it does often feel like a prison. For me, it feels like I have power over nothing; which isn't exactly true but it often feels that way.

I think it took five years to get to any degree of acceptance. Even so, I still get mad like you do on a regular basis. I'm grateful I am tenacious or what I've gone through (not just MG) would've killed me by now.

You just have to set up your life for success. I know, that sounds trite. But really, take some time to write down how you feel, what you might be able to do to make daily things easier, etc. Like blowing the air in the car on your face when you go out. Like having paper plates/spoon/cups (even though it's not environmentally friendly).

I'm glad your neuro was sympathetic and will try IVIG. Think of the time in the hospital as an investment in your health and well-being. Who gets something for nothing these days?

I do understand the level of anger. So many people can't deal with that emotion. It scares them. But it's so normal. One summer I had a pinata for my birthday just so I could hit something! There have to be ways that you can get out your anger so you could feel better. Anyone have any creative ideas for that for Allen? Like get a water pistol and shoot at things in your backyard. Or scream when no one's around. Or write.

I don't know what to tell you because there is no good answer. It's a constant struggle to deal. I think that life always surprises you though and you never know what good things can come your way to lighten your load.

Annie