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Old 08-07-2009, 12:13 AM
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Nicknerd Nicknerd is offline
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Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Default I hear ya!

I know exactly how you feel, Allen! The funny part is how seemingly excited the neurologists seem to have an 'MG patient.' Do any of you get that impression? When I first started exhibiting these symptoms, my initial neurologist almost seemed happy that I was an MGer, then would follow the head specialist in MG, the residents, etc. They seem to believe it's so treatable...I was so hopeful that my symptoms would go away, but i'm now realizing that this is something I'm going to be struggling with on a daily basis for a while into the future...My voice is somewhat normal now, but I still can't really sing, talk for too long, etc...The only real difference is that when I first start to talk, my voice is normal...As per usual, though, that old chestnut comes back...It's so irritating...The last few days in the hospital were very depressing for me...I was really begining to see the progressiveness/tenacity of this illness...I spoke with a speech pathologist who said that I should see one often to manage my symptoms...I thought the symptoms would go away, so why should they be 'managed'!

Anyway, all I can say is that things could really be worse, believe me! I know that it's bad to compare, and many people around me love to do that, and it can be annoying since it's no walk in the park dealing with this disease...But it really could be worse! All you can do is try to make it through...As cheese and cliche as it may sound, being hopeful will help...When I feel stressed/sad, my symptoms get worse...Also, I really do believe there is hope, especially since I've met someone who had pretty much the same disease-activity as me and seems to be asymptomatic now...

Take heart...The right combination of meds should help, and later, you might not need anything at all to manage your symptoms/disease...Don't get too down, even though it's hard not to...Things will get better!

Nicky
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