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Old 08-07-2009, 01:28 AM
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Twinkletoes Twinkletoes is offline
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Join Date: Jan 2008
Location: Beautiful central Utah
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15 yr Member
Twinkletoes Twinkletoes is offline
Grand Magnate
Twinkletoes's Avatar
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
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Quote:
Originally Posted by lady_express_44 View Post
Hey TT,

So has your right hand/mouth and feet gotten progressively worse over this year, or is it just recently bothering you? Are those NEW symptoms for you?

Have you been checked for any kind of infection? I had a relapse while on LDN that lasted about 9 months, but I found out later that it was due to an untreated infection in my tooth under my cap. Soon as I had it removed, the relapse let up ... although I was left with some numbness/damage from that one.

Do you have spinal lesions that you are aware of?

If you have the option to take Copaxone too, why not do that? Double protection is a good thing, right?

Cherie
Cherie, the progression (of numbness) has been slow and steady for the past year. I don't think I have an infection, but how do you know for sure? Do they draw a blood sample or what?

When I got dxd in 2007, the only lesion was a marble-sized one on my cervical spine.

I just don't know about starting up Copaxone or any of the DMDs. I lack confidence in their ability to actually halt/slow progression. I just wish there were more clear answers.

I was all ready to make an appt. with a neuro for an MRI, then I had a conversation with an MSer who said she hadn't had one in 30 years! So I don't know if I really need one. So confewzed.
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