It really is a very frustrating disease.
Thankfully I havn't had any rushes to hospital er's for my mg.
Buuut visits to my neuro are always a bit of a struggle, cos he does all the chicken dance tests etc, and I have the strenth of a normal person, ( said sarcastically)
At home its a different story, I struggle to type and at other times other easy day to day things.
Sometimes I want to say to him " hey why not come home with me for a week and see just what I'm like".
I think I've decided next time I'm about to see him, the night before I will stay up to 2am, which always makes my mg worse, and after a 3 hour car journey, he may just see what I'm like generally...............I'll let you know, I see him Monday.