Hi Everyone:

I haven't been able to post for a couple of weeks due to an exacerbation but have been trying to keep up with everyone the best I can and have been thinking of you. Welcome to the new folks. I look forward to getting to know you.

The last I posted, my husband and I had gone to our daughters in Virginia (an 8 hour drive) for our grandson's first birthday. We were only there 4 days and didn't run around or do a lot while there. When we got back home, I crashed so badly and was basically bed-ridden for over a week. I'm just now beginning to get back on my feet some with extra IVIG's and increased Mestinon, but still not doing that great.

However, I've also been feeling pretty overwhelmed with my work situation (what else is new?). I have posted before about going on disability and then finding out I won't get a paycheck for 3 months (between short-term and long-term disability), which is really bad timing financially as our daughter is getting married Sept. 12th. I was also told by my boss this past week that I had to go back to work (at least a few hours each week) because of the FMLA -family and medical leave act, or be terminated. So, I worked 6 hours this week, which was rough, but I'm not ready to give up my job yet. I'm still hoping I can work part-time at some point. Anyway, this has caused a lot of stress and worry, too. I have trouble sleeping just trying to figure out how to manage it all and make the right decisions. My husband tells me to just let it go, everything will work out. But it's hard.

I don't know if it was the travel or stress or combination of the two that has made me so much worse. Have any of you experienced an exacerbation of symptoms from traveling or trying to manage stress/worry? It doesn't seem like these two things should make me this much worse, but, then again, I tend to think that about everything.

Thanks for any thoughts or experience you have on this subject. I hope each of you has a good beginning to the week on Monday. Erin, if you read this, I've been thinking of and praying for you. I hope you're okay.

Thanks,