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erinhermes · 08-09-2009, 07:41 PM

Hey honey! I am so sorry you are having to go through all of this! It is just not right!
When I was in last Saturday, they tested EVERYTHING - my arterial blood gases, 02 levels, EVERYTHING, plus my neuro was THERE to make sure they checked me out.

I don't know why you are getting the runaround. This is NOT rocket science.
I think a lot of drs suffer from high functioning autism - hence the lacl of empathy - my son has it as well, so I am NOT making light of it @ all, but I do truly believe that.

I remember a trip to our lake house b/4 I was dx'ed. I kept telling Mike I was having problems breathing, and we thought about turning around but I really wanted to see my grandma, so we kept on. By the 2nd day I felt much better. I was even able to get my housework done, but couldn't eat anything and was down to ensure - hate that stuff!

You may want to call your dr and ask (for future reference) that they test you for everything while you are @ the hosp.! Also, you need to stay overnight - just in case. They made me stay even though I begged to go home!

I'm praying for you, honey!
Love,
Erin

Quote:

Originally Posted by momma3love

Hey all. This last week has not gone very well. Last friday I saw a different neuro but in the same office as the one I usually see. He was actually new to the office. I liked him tho. He put through orders for me to get plasma done. So I have to wait for that to go through with the insurance company and what not.

In the meantime I of course continued to get worse. I went to the local ER on Sunday night. They were swamped and called my on call neuros. They wanted me transferred to their ER. This is about 2 hours away from where I live. So they say it is ok for my bf to drive me up there. This is the worst I have ever been. I was not able to hold my head up or take anything more than a shallow breath. But of course my O2 stats are fine. Supposedly they are going to admit me through the ER when I get up there. This is the only reason I go. Can you guess what happens after I drive all the way up there, wait for several hours in the waiting room and then for a doctor to see me, yup THEY SENT ME HOME!!!!!!!!

Granted I was feeling better than when I had entered the local ER, but they did not do anything to help me. I would really like to know why this happens to me. Why do I feel better on my own??? This is why I had stopped going to the ER for the longest time. They usually make me sit and wait and I feel better. Does anyone else have this happen? Or know why it does?

Well I am still waiting on the insurance company to say yes or no on plasma. I am still very weak but have not gotten that bad again yet. I am very afraid I will get bad cuz I know I will not go back to the ER again. I did not have the money to go up there the other day for nothing. I told the nurse as I left that next time my family will have to call 911 after I pass out, thanks to this experience. I know that they could have kept me because some of my tests came back iffy, as the neuro put it. Doctors just don't understand what their decisions cost us.

So I am very frustrated and waiting as patiently as possible. I really hope everyone else is doing better than this! I wish you all a happy healthy day today!