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Old 08-09-2009, 09:29 PM
lynxgal lynxgal is offline
Junior Member
 
Join Date: Jan 2008
Location: Ottawa ON Canada
Posts: 96
15 yr Member
lynxgal lynxgal is offline
Junior Member
 
Join Date: Jan 2008
Location: Ottawa ON Canada
Posts: 96
15 yr Member
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Hi Diana nice to meet you. Kitt has given you some excellent links and information!

I'm waiting on some genetic tests to come back to confirm my dx of CMT. I too have toes that are numb all the time on my right foot however the numbness in the rest of my foot seems to be intermitant. When the numbness started to subside in my foot it became evident that the muscles had been damaged in that foot/toes during that "attack". I use the term "attack" because my disease seems to flare. I do have constant symptoms but I also have "attacks" of symptoms that clear up.

I can't remember my velocities right now...but my daughter's (11) are 5/17 were her worst recorded numbers.
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Charcot-Marie-Tooth Disease Type 1A
Fibromyalgia
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