Hi Annie,
Yeah they did do tests and I saw the resident neuro. They did a very long exam. They did an ABG, never said how it looked. They did a negative something or other breathing test and the one where you blow as hard as you can. The problem was the respiratory guy and the neuro were arguing over if he was doing the test right and if the results were good. They were very bad for me, the negative one was less than 20. But the RT guy was like that's good. It was all very strange. After the breathing tests I got very tingly in my feet, hands, and face. They said this was because I was expelling all the CO2. The neuro said she was not sure why that was happening, but I must be fine because I was getting rid of it now.
And they released me saying they did not think it was really my MG getting worse and that they could find nothing wrong. But I really should speak to my reg doc about my extreme anemia, the blood in my urine, oh and my potassium is a bit low, and my sugar is a tad high again. But you are fine go on home.
That all makes sense right.
I just hope I can get my plasma exchanges started next week. That is all I can hope for right now. I hope you are feeling strong and happy today!
Quote:
Originally Posted by AnnieB3
Sometimes I have a hard time responding to posts like yours because I get so damn angry (at doctors).
Did they even do breathing tests? An oximeter while you were walking? An arterial blood gas? Not that the test is fun but it is useful. You can't tell how an MGer is doing by looking at them!!!  That's why there are these tests. Did they even do a clinical exam? Call your neuro?
Kate, I totally agree. I have a small dog and I can barely manage. I can't imagine having children to take care of while having MG.
Next time, ask them to do those tests. You cannot judge a patient's disease by how they look. I am so sorry they treated you that way. Please don't give up on seeking out help. Those ER doctors probably read a paragraph or two at the most about MG, saw that grotesque photo - the same ones they print over and over in books - and figured you were fine because you didn't look that way! Most ER doctors are out of their league when it comes to MG. But they do have brains and should be able to logically work through any medical problem!!!!
You just take it as easy as you can. I hope your neuro can fix all this BS for you and make you better.
Annie |