Hey Erin!
I totally agree about the autism thing. My lil sis has it. And doctors definitely do not have empathy. At least not any I have met recently. I guess they are all burnt out. I really did not like the neuro that oversaw me while I was in their ER. I had to deal with her before when I had surgery. She does not get MG at all. Even tho she says she sees lots of MGers in clinic. And she would not let me explain my worries of going home and getting bad again.
I am doing ok now. Still having a really hard time every day. If I am not all over the mestinon doses I am in big trouble. Even then I am taking 6-8 a day, more than ever before, and that almost does not seem like enough sometimes. I am doing everything they ask and that I can do to get better and I am not. I cannot live on my couch forever. LOL. It's really not funny, but they do not get that.
Well I am praying that we both feel better soon. No more ER visits. Right?
Well I hope you enjoy every minute you have left with your niece. Lots of hugs, and I like to watch a movie all crowded on the couch with my boys when I can't do anything else but want to do something with them.
Hugs
Carrie
Quote:
Originally Posted by erinhermes
Hey honey! I am so sorry you are having to go through all of this! It is just not right!
When I was in last Saturday, they tested EVERYTHING - my arterial blood gases, 02 levels, EVERYTHING, plus my neuro was THERE to make sure they checked me out.
I don't know why you are getting the runaround. This is NOT rocket science.
I think a lot of drs suffer from high functioning autism - hence the lacl of empathy - my son has it as well, so I am NOT making light of it @ all, but I do truly believe that.
I remember a trip to our lake house b/4 I was dx'ed. I kept telling Mike I was having problems breathing, and we thought about turning around but I really wanted to see my grandma, so we kept on. By the 2nd day I felt much better. I was even able to get my housework done, but couldn't eat anything and was down to ensure - hate that stuff!
You may want to call your dr and ask (for future reference) that they test you for everything while you are @ the hosp.! Also, you need to stay overnight - just in case. They made me stay even though I begged to go home!
I'm praying for you, honey!
Love,
Erin
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