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Old 08-10-2009, 02:05 AM
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Hi Tosha and Welcome,
I'm so sorry you have RSD. It's good you are learning as much as you possibly can about it. When I was diagnosed, it was four years following the surgery that brought on my RSD. The Dr. diagnosed me is less than a minute, ordered a Tens Unit, Ordered physical therapy. I added massage therapy to soften up tissue for further progress. I had frozen shoulder - Besides the physical and massage therapy, I went thru desensitization.That is important at the beginning, because we can't stand to be touched or clothing, or wind blowing on us. In addition to the therapy, I did the desensitization at home every day. I took 5-6 plastic bowls and filled them with cotton balls, sand, coffee grounds, rice, popcorn kernels, etc. That helped a lot. Run hands thru these bowls or feet. I think the Tens Unit helped me to. It's a small like rectangle with batteries. It has lead wires with round patches on the end. You put the patches on the senstive area and you can control strength of pulses and timing of pulses. It helps he pain by interrupting the pain signals to the brain. I guess sort of like the SCS, but without surgery.
Be sure and read and research as much as you can before you do anything. Some procedures have made some people much worse and spread. Two places for good research are RSDSA It a national organization. Under support, you can put your zip code and find the closest support group near you with contactname and phone number.
Also a retired Dr. Hooshmand still has his website up at rsdrx.com It's good -under puzzles there are 140 questions by patients with his answers. Don give up and stay positive. It helps a lot. RSD affects the Limbic part of the brain that controls emotions, short term memory, sometimes we grasp for works, can't remember them or lose our train of thought. depressions is common as well as anxiety. Most of us are on anti-depressants that help and anti-anxiety helps calm the nervous system down.
Take care, your friend, loretta
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