Quote:
Originally Posted by JudyM
Hi Diana
I hope I can help with some of your concerns. You are correct, the pain can come and go - when you are pain-free, you are able to eat and drink. When you have a bout of TN, you can barely open your mouth to drink, let alone chew anything.
When I had my first bout, I wasn't able to put make-up on my face because it hurt so much. If I were to have taken a feather and brushed it against the side of my face, the pain would have been intense. It is the most debilitating pain I have ever endured.
I had a balloon compression operation and I've been pain-free for over a year. What a blessing, as the meds were making me very groggy.
My suggestion to you would be to get your Mom in to see a neurologist. They will be able to diagnose better. In my personal opinion, it sounds as if she may have TN.
I hope you and she can find the answers you need in order to help your Mom through this very difficult time.
Kind regards,
Judy
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Thanks so much Judy, I was beginning to wonder if anyone would answer me. I didnt want to be a bother. I took her to her MD and told him directly what she is going through. He is getting her seen with Vanderbilt neurology.
Thanks and God Bless everyone who is going through this terrible disease.
Diana