First.. Welcome to our "family". Now on to the rest of your post. I have been DXed over 18 years now. I had my thymectomy in 1991 both cuts, neck and chest. I had all the meds, mestinon, prednisone and so on, I went into a med free remission for 17 years. My double vision never went away, got a bit better but always have it. I am now out of remission but can't take any meds due to severe reactions so I control my MG with rest. As for the swollen tongue, I too have that and was told it was due to allergic reaction to medications, I have to take my thyroid meds so I take benadryl with anything I take. Make sure you let your Dr know about the tongue swelling. MG is not something that is black and white, everyday is different, like right this moment I feel strong and happy and feel like I could run 10 miles, an hour from now I may not be able to eat. Just know that you can come here to share your anger, happiness, hopes or just to get advice.