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Originally Posted by daniella
Do you live near Mayo? Since I lived out of state I sent them my records to see if they felt they could assist me. I have been to Cleveland Clinic and have mixed feelings but do know someone with rsd who has been helped. What tests have your neuro done? Did you have emg,mri'etc? Are you currently doing any treatment like meds,etc till you decide? I would encourage you to look into that as well. Also if you chose not to go to Mayo do you have a univeristy or teaching hospital near you?
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Hi Daniella:
I live in the Orlando area, and Mayo is in Jacksonville (about 2.5 hours). Shands is a teaching hospital in Gainesville, which I have heard is good - but I don't know anyone who has been to either one... I'm hoping that at least one has a good neurology dept.
I had a EMG over a year ago ... (I thought it was carpel tunnel initially), but the EMG was normal. I've had several MRI's (brain, spine), and they were normal. I currently take Neurontin for the pain and I just started Seroquel to help me sleep.