Welcome to the forum. I've never posted or been on a forum before either, but this is a tremendous group of people on here who are very kind and willing to share. It's been such a help to me and I hope I've been a help to some.

I'm sorry you're struggling again after doing so well for a time. I've never heard of the med you mentioned either. I take Mestinon 4xday and sustained release Mestinon 1xnight. Also, 2000mg CellCept daily and IVIG once or twice per week. I can't take prednisone due to blood pressure issues, but I felt better when I did. I had to go on disability this past April.

It sounds like you do have a great neuro who will do his best to help you get better again. In the meantime, try not to be hard on yourself and get the rest you need.

Take care,