I had a thymoma removed one year ago, had a sternotomy, 7 in. incision.

I started with chest pains, thought it was gall bladder, had those for a few months and charlie horses in my ribs. Took a heart stress test and could not even last 8 min., couldn't breathe.Then eye started twitching and drooping, this led Dr. to test for MG. The droopy eye is my main symptom and still is post surgery. I had about a 2 month remission.

So I have a droopy eye most days. Sometimes I get that thick tounge, I feel like I am talking with a mouth full of oatmeal. It only lasts a few minutes. I get leg cramps a lot in my hamstrings and shins. I am real out of breath when I walk up stairs and my legs feel like jello.

I used to LOVE HOT weather!!! Now I HATE it. I really start to suffer just standing in it.

If you want anymore info on the thymectomy I can tell you, just let me know.

I too am staying away from pred. I take mestinon and CellCept. I also take Vit C & E combo, Centrum,plus others meds for other conditions. I get a B12 shot every 3 weeks.

Good luck on your journey.