Hi Kate and others, I don't post often because of the RSD pain in my left arm, but I read this forum all the time. When I read this post I wanted to jump in because I too have been dealing with the same issues since my RSD diagnosis in May 2007.

I started with migraines in December, 2007 but I did not know what was going on until I lost my vision for about 16 minutes back in January of this year. That incident resulted in a lot of test taking (MRI, MIA, etc) and showed that I have what is called a pseudo tumor cerebri, which is a fancy name for increased cranial fluid. My neurologist (I have several) feel this may be a result of the RSD. I never once had a migraine prior to the RSD diagnosis, so it is quite frustrating and scary.

I also have been dealing with the extremes in heart beats. Just a few weeks ago, for no reason, while I was watching TV, my heart rate jumped up to 150 beats per minutes. This went on for a few hours before it finally settled down. I had my purse in my hand, ready to go to the ER, but I took an Ativan and it finally settled. What a miserable experience.

Then I started to have chest tightness and pain, along with some slight heartburn, so I was started back on Prevacid last week and I am so happy to report the chest pain (really bad) and tightness have eased up a great deal. It is all so scary. I never know if I am experiencing a new problem, or a continuation of the RSD. I don't think my doctors ever really know for sure either.

It is all so hard to deal with sometimes and I can't thank the folks on this forum enough for sharing. It has gotten me through some really rough patches. Kate, I hope it all settles down for you so you can trust your body again. The fear of the unknown is so unnerving.

Lisa