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Old 08-13-2009, 02:03 PM
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erinhermes erinhermes is offline
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Cool Hello and welcome!

What wonderful info!

I for one absolutely HAD to take pred as I nearly died from MG, but would love to be able to get off of it ASAP, since I have had tons of side effects v- but am still grateful that it DID save me - I spent 8 days in the ICU due to MG!

It was truly terrifying!

I am 35, but was dx'ed right b/4 my 34th bday - by that time, I was too weak to walk, talk, swallow, etc, so when I was finally admitted I was given tons of IV IG, steroids, mestinon, and fluids....

I would love to hear more of your dtory when you have the time and energy!

Again, WELCOME! THere are so many amazing, wonderful, brilliant, and above all empathetic people in this site.

Feel free to vent - we;ve ALL been there/done that!

Erin






Quote:
Originally Posted by djvallejo View Post
Curious if anyone has any stories about treatment of Myasthenia Gravis with Vitamins, Nutrients, Herbs and Supplements. Please help as I am trying to stay away from taking Prednisone. On Mestinon currently
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