Quote:
Originally Posted by Nicknerd
Hi there,
I too am being monitored for Lupus as I have a positive ANA test--but, my levels are quite low and I was only positive on one of the tests that they use (which apparently, isn't very reliable...why they use it at all, I don't know..lol)...I was tested for Lupus about 5-years ago as I was having joint pains everywhere...5-years later, I still have the joint pains, but guess what? They're not as bad! I haven't seen my rheumy lately because of all this MG stuff that started in the last year, but I'm planning on seeing him again since my thymectomy to see where my antibodies are at...Do you know if any of the other Lupus serological tests were positive? Anti-ds DNA, antiphospholipid, etc? My ds dna antibodies are extremely high, over 200, which is a worry, but since the ANA is low, I don't think it's too bad (maybe?). I also have antithyroid antibodies as well, but normal thyroid levels...
Anyway, even if it IS Lupus causing your hairloss, Lupus is very strange...It can be extremely mild and/or limited to one or two areas of the body, which is annoying, mind you, but at least you'll be comforted in knowing that it doesn't necessarilly 'progress.'
Anyway, here's hoping that whatever's causing the aching and hairloss gets fixed soon! 
Nicky |
Thanks for the words of encouragment. The two tests my primary did that she said indicates lupus are ANA which was positive and antinuclear antibodies which was high. The rest of the testing she said was up to the Rhematologist. So you don't actual know if you have lupus or not either? I hope you will go back to the Rhem. Also I hope you are feeling well. Thanks again. Dorothy