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Old 08-15-2009, 09:19 AM
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Join Date: Aug 2009
Location: El Paso, Texas
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15 yr Member
Penguin Penguin is offline
Junior Member
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Join Date: Aug 2009
Location: El Paso, Texas
Posts: 23
15 yr Member
Help more explained

I know this is long....but i wanted to take advice and explain in more detail.
Did, I have an injury...that's a tough one. I initial hurt my left knee when i was 16, i'm now 28 and have had problems with my left knee since then and 2 suergeries on it. My C5-C6 (we think) i hurt it in a car accident about 8 years ago, I had them fused almost 2 years ago. Not long after the car wreck i started having what i thought were migrains, but were more along the lines of tension headaches, i had one last for 1-2months, then i went to a chiro and "crack,snap" later i could see vividly again and my head and neck no longer hurt. Well, over time as one could imagine things started getting worse and worse. Once, i fell out of my chair while i bending down to pick up a toy for my then 6-month-old. My legs had given out on me and "stopped working" meaning that they didn't want to listen to me. Also at this time i was having a hard time comunicating. I could hear everything you were saying perfectly fine, but it took me forever and a day to get my thoughts from my brain through my mouth, also had another one of those headaches. So i was rushed to ER and they did this test, that test and every test except for an MRI of my neck (which i told them to do). Well, everything came back hunky-dorie and i was written off as a mental-case b/c after a night of rest the symptoms got a lot better. Then about a year later all the same things happened, but this time it started in my right shoulder. I thought i had just slept on my shoulder wrong, b/c i had slept on the couch that night, but it kept getting worse and worse. My elbow, fingers, and shoulder blade were killing me, plus it was getting really hard to use my hand and my writing started to look that of a grade-schooler. I could barely move my neck, then it started into my other arm, then my legs started up again. One night I got "stuck" in the hallway because my legs had given out and i couldn't move, i had to "army crawl" my way to a phone. When I finally got into see the neurosergeon, he almost did the surgery that day (was a Friday) but instead he cleared his Monday calander for me and I had the surgery done then. Now, while my legs had stopped listening to me, they never really did hurt, sure was uncomfortable, but didn't really hurt, not compared to the headaches and my arms. Also, my senior year of HS my legs did the exact same thing (this was before the car wreck) so I don't know what the heck my legs are thinking or doing, but after I had the fusion of my C5-C6, my legs have been listening to me.
Now, what supposidly set off my RSD (if that is infact what i have) i don't know! I was doing housework and then all of a sudden my left knee started acting up....which is normal, but then it got worse and worse and by the end of the night it would not support me. Yeah, it hurt, but it mainly felt like it was just dead weight and "stupid." Went to doc, got referall to ortho, had an MRI which showed that my knee is fine, but that i have speckled replacement of marrow w/ fatty marrow. The ortho doc sent me to physical therapy (w/o even telling me what the MRI said ) which is where i found out what the MRI said. On the MRI it said that the bone marrow thing could be a sign of RSD. Went back to my regular dr and she said, yeah, you have RSD, and said that she would refer me to a pain managment doc and to keep up with the PT.
Cheif problem....i don't think RSD fits. I have read a lot of what yall have written, and yeah, i can relate to most, some of it....but not to the same degree that all of yall are experiencing all of this. Also, my arms are starting to act up again and I am being reminded of what it felt like when I herniated my C5-C6 (whichever nerve that is). I know RSD can progress, but it hasn't been that long. I honestly believe that my dr jumped the gun and hasn't ruled out really anything else. I think she just went w/ what the MRI-reader-tech person said it could be. So now i don't know what to do. It's not like i can just make an appointment with neuro or anything like that on my own. I am so confused and lost. I just want to know why i feel like i feel, cold, weak, painful, numb, tingly (and not in a good way ) and just plain wierd. Thanks for listening.
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"Thanks for this!" says:
Dew58 (08-17-2009), loretta (08-15-2009)