[QUOTE=Jennelle;552323]First I would like to cation you all that they will lie to you. They sent me to the detox unit to get off the narcotics...fine...they said I wasn't addicted just physically dependant,. Turns out I wasn't...i never had withdrawls there. On top of it when I got up to my room they searched my bags and took my smokes and lighter. I had to do a breathalizer, and give a urine sample.
No one prepared me for this or the fact that my family couldn't even come and see me!!!
I got out of there in record They just told me to do it anyway. I was in pain and bawling. The answers to getting flairs was that I was just going to have to tough it out. So I do what I can
To make it worse I was in a car accident the other day and my casemanager is giving me a hard time to get back to the clinic asap. I told her when I was cleared by my doctor I will. She acctually had called up a nearby hospital to see if I had been taken there.....of coarse I went to a different one. Am I wrong or is this none of her business? I told her she had no right looking into my medial records not pertaining to L&I! She seems to think I can. The worst thing is not that i was taking the saboxone everyone this I am an addict and wouldn't even give me pain meds after the reck. I hurt emotionally, spiritually and physically worse now than ever.
Don't get on suboxone ever....it doesn't help for pain...you still get bad withdrawls coming off of it and then they take away all the rescue meds. Now I have nothing!!!! I sleep so little....when I flair I want to die....I try it all the relaxation tapes, slow ROM, anything. To top it off they won't let me use my compression bandage (keeps my swelling down and helps desensitize) so now I am getting hypersensitive again.
Thank you all for you support.
I will try and let you know more as I go....
Hope this finds you all well and in a low pain day!
Jennelle[/QUOTE

Hi Jennelle,
I am so sorry you have been thru this nightmare. I remember you posting about going. I don't understand exactly what or why you were going into this detox hospital. Do you have a RSD Dr.? Do you have an attorney to protect your legal rights for your medical coverage?
I've had RSD 14 years, now full body or generalized. I've been on vicodin for years. And lorazepam for anti-anxiety- it calms the sympathetic nervous system down. I wasn't sleeping well at all-not getting to sleep till 5-6 a.m. for weeks. My Dr. took me off ambien cr and put me on seroquel low dose. 300 mg. He has been doing a trial study with 200 people for seroquel and see how people did with fibromyalgia. He found it to be a great sleep aid in addition. So I've been sleeping 9 restorative hours minimum for 3 weeks now. He cut my anti-anxiety med in half and left the vicodin up to me. I went back and told him I had cut the vicodin down from 6 a day to 3 a day-even 2 occassionally.
One of my very best friends is a alcohol and drug counselor in Oregon. That's where we are from. They were just here for 2 weeks this spring. I dont understand why they won't let you have pain meds for RSD including flares. It's really important to keep our pain level down thru pain meds, relaxation techniques, stretching, meditating, a lot of different ways to calm ourselves down. But I don't know anyone that can get by without taking some form of pain medication. RSD is one of the most painful disorders a person can have. It's rated 42 on the McGill Pain Scale.
Medical records are confidential. How is it that this lady has access to your car accident records?
I'm just not getting the reasoning of what you are going thru. I understand when people go into treatment for alcohol or drug abuse. But I guess i don't know anything about the sub. drug you got off of. Please explain this to me. We all want to be here for you! Take care, loretta