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Old 08-17-2009, 07:52 AM
CZZ74 CZZ74 is offline
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Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
CZZ74 CZZ74 is offline
Member
 
Join Date: Nov 2006
Location: Florida
Posts: 422
15 yr Member
Default Seizures, brain Shudders and RSD

Hi I wanted to share this incase it helps someone else and saves you some time. I am in years 6 of my rsd, full body have had every treatment in the world literally including coma in Germany. Last year I began having seizures. Terrible ones. they mimic petite grand mal. The brain shudders are terrible and painful. The seizures continue, I am conscious through them , they most happen at night and in am just as I am waking. I have had one during day. I wrote dr. Schwartzman he said they are not seizures in the traditional fashion it is the rsd corrupting my central nervous system causing these events. If I could find the email i would quote him exactly. They have become so frequent and severe that over the past 6 months i have managed to get all the way from Cat scan of the brain- results nothing- to mri of the brain- nothing to the ulitmate test MRA of the brain with contrast- results perfectly normal. So Dr. Schwartzman was right. I was sure he was wrong and i had developed epildepsy from the coma- alot went wrong. I thought this might be helpful to anyone else suffering these seizures and brain shudders. It is alwasy the rsd. very depressing in a way as nothing can be done. Please post if you have these too and what meds you are taking and if it is working thank you cz

Last edited by CZZ74; 08-17-2009 at 07:54 AM. Reason: spellling
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