Quote:
Originally Posted by poetic license
Ok so here's the deal---
I want to get moving, I read what some of you all are doing and I'm jealous!
I am only 25 years old but insanely out of shape.
Problem is, after my two leg (transverse myelitis) attacks, every time I walk even the slightest bit vigorously, I get tingling in my butt, sometimes legs and feet too. I'm not sure how much I should just push through it... and swimming is not an option for me right now unfortunately--that would be heavenly!
Any ideas or suggestions? Before I knew I had MS I was doing PT and all kinds of stuff through the numbness, I was just forcing myself to move. But now that I know what I have, I'm scared of provoking a relapse.
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Tingling and numbness are sensory symptoms - abnormal sensations that are very normal if you have MS.
These sensations can increase, for some, during exercise but once you relax and cool down the sensations will also calm down.
You are not hurting yourself or the MS. Quite honestly, if I didn't exercise because of sensations, in my case those sensations are buzzing/vibrations from the waist down, I would never do anything.
I was 24 when I was diagnosed (I'm 48 now), my neuro told me the best thing I could do is walk, this disease likes to effect my legs ( I have numerous cervical spine lesions).
I thought he was out of his flippin' mind, I was having my first exacerbation which was quite severe and could barely get around my home let alone go for a walk.
I did take his advice, I started to try and walk. At first it was just down the drive way and back. I would come back exhausted, weak and my legs would be vibrating/buzzing. All I could do was cry. Then after awhile I would do it all over again and cry ( if I haven't mentioned it, I did alot of crying in those early years). I found the process to be frustrating, tiring, and I would get angry at my legs.
I have gone through this same process 5 different times due to exacerbations. Each time I get angry and frustrated but I keep going anyway while I lovingly curse my neuro under my breath.
Because this disease likes to effect my legs and mobility I truely believe had I not kept trying and still try I would have been using a wheelchair/scooter very early on in my diagnosis.
It's important to rest and cool down after exercise. Taking a cool shower after your exercise will decrease your core body temp quicker and allow you to feel better quicker after working out. I also use a fan when I use my Elliptical or PT exercises to keep my core body temp down.
If this thread will motivate even one person to start exercising or seek the advice of a Physical Therapist (PT) it's worth the effort to keep posting and to keep this type of thread going.