 |
Senior Member
|
|
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
|
|
|
Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
|
Hi Martha!
Oh, sweetheart, I am so sorry! Those plasma exchanges are REALLY hard on the body. Are they considering IV IG for the future?
How did they handle the blood clot? Were you given shots in your stomach?
I cannot imagine what you are going through, but please, please,please don't give up!
Too many people love and need you! You are so very important .........
WE need you, as well!
What meds are you on now? What do you dr's say?
Hang in there, baby!
Love,
Erin
Quote:
Originally Posted by leaningin
I've just been discharged from the ICU again. Had 4 plasma pheresis treatments while there. My body took those treatments pretty bad. Chills, fever and horrible pain. During the 4th treatment the pain was so bad they had to stop. They discovered that I had a blood blot and stopped the treatment. So now I've tried Mestinon, IVIG and Plasma Phersis. When the doctors discharged me they said they didn't think they had anything else to offer me other than the steroids I'm taking. I'm weak and shakey and having a lot of trouble breathing. I don't know where to turn or if I should give up. I'm will to try Mestinon again but how do you all handle the gastro-intestinal issues that go with it? I would be grateful for any feedback. I'm scared.
Martha
|
__________________
Erin
.
|