'Hey sweetie!!!!!!! You are soooo right, we need all the support we can get.....this stupid disease is so rare that most "medical" pros have no idea what to do.

I do hate the weight gain, but more than that I hate the cruel remarks people make about me. My own father has said that I am "fat and disgusting" - granted, he did have a stroke 5 yrs ago and suffers from aphasia, plus he is just MEAN, but it was still a terrible thing to say.....my beautiful little niece asks me why I don't look "pretty" and "thin" like I used to.

I think if people were a bit kinder, I wouldn't have such a problem with my weight gain - due to the pred - but if I don't take it, I DIE! It's that simple!

Even if you DO have to take pred for a while, hopefully, you'll feel GREAT once again!

Contact me ANYTIME @ erinhermes@hotmail.com

Love,
Erin
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