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Old 08-19-2009, 11:51 AM
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default thanks Jaye for the link

bob,

I am one of those acknowledged by Nick in his book because i happened to be in the thick of the amgen debacle. We could match nick's book with another of our own experiences. Remembering exactly when and where i was, just like when jFK was shot, I realized one morning that my generation would not be cured, but much worse - realized that a treament would not be produced unless it was a silver bullet. Canceling gdnf showed the disconnect between helping patients and making money. IF it can't beat or match sinemet in relieving symptoms, will they even produce it? GDNF should be available on the market today.


I've had pd for 20 years and take sinemet every 2 hours. By the end of each day i'm a mess pumped full of all that sinemet. It's the meds that very well might kill us.

But put on music with a beat and i can dance for hours and i do a pretty mean hoola hoop too. dancing is to a pwp like singing is for a stutterer.

say hello to anuket for me. first time i heard her sing and you have a good blog!
read more here: www.pdpipeline.org

here's Andy: http://pdpipeline.org/andygrove/agrove1.htm

video of Andy:
http://pdpipeline.org/andygrove/agrove7.htm

paula
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paula

"Time is not neutral for those who have pd or for those who will get it."
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