Quote:
Originally Posted by Burntmarshmallow
I know of at the least 3 people that have A.D. 
I being one of them Mine came from an auto accident . Doodlebugs sadly hers came from failed surgery ... well surgeries more then one if i recall. and I believe Nikki was hit with A.D. from sucessfull brain surgery not positive but I think so.
You are not alone . I can not have any surgeries any more and I have a neuro stimulator implanted for my pain. as NO MEDS helpped with pain.and like you no doctors or neuros wants anything to do with me . Kinda stinks when they do their work and things turn out diffrent they toss ya to the curb like trash then when ya try to make things better ..find a diffrent doc and fill them in on your medical history... they act like you have cooties or something ( cant get to rude here) they are afraid to do any work on you. or in my case they cant because it will leave more permante dammage. but i have to truthfully and honestly say that geting my neuro stimulator has given back part of my life. It dose not take away all my pain but it takes the ugly edge off it. I have been reading the Neuro stimulator is being used to treat A.D. so maybe you could inquire about that as a possible option for you. And if i can help do not hesitate to private message me or post here. I wil be more then glad to help with ANYTHING!! 
I am so sorry you have to live with this horrible monster pain eveyrday. But you are not alone not in the least not one bit. I will see if i can round up the others I mentioned so they can reply also. but first my pain pal I need to give ya lots of
Low pain wishes Kewl
PEACE
BMW |
Hi, Same thing, cuties, give it time, what time to figure out how to survive?
My insurance company says I can't take fentanyl cause it is an off label use.
Can we petition the drug company to take the word cancer out or add brain injuries in? I'm so upset today... I can't cope anymore. I lost all my friends.
My family is mad at me; my husband of 27 years resents me or maybe it is himself, because the first 6 years the neurosurgeons were telling me not to get the surgery and then my husband found one who would.
I am so sorry for all of you in here that share this disease. This should be a disease they do on people who molest children -- now wouldn't that make criminals think thrice? AW, I don't mean to come in on my first time and be balling like a baby cause I realize finally I get it, no one wants me, loves me, but u know they do, they just can't cope either. I say we write our congressmen; write to Obama, these doctors take an oath that they will do no harm. What I understood is that if there are a-typical symptoms MVD is not recommended. I just had a pain pump put in, for what? so I could have another scar? I'm venting and please I don't want anyone to hurt. But I hope it is safe to vent. At least no one in here will scream at me b/c I'm crying or in pain. The new pain doctor I am seeing, well his PA called me an addict a few weeks ago. What? It still bothers me. The doctor said he would see me and not she. When I called in for a refill of my pain meds. Instead of 1-2 every 4-6 she gave me 1 every 8 hours. why? I'll have problems getting a refill with my insurance company this month at least. She just graduated this past May. She put Clonodine in my pump and I went from 130 lbs. to 190. in a month or six weeks. My husband had to take me to Kohls to get pants bigger and bigger. Now I read that it is a topical. Has this happened to any of you? Tegretol worked for me when I had TN, I only lost short term memory and most of my expensive jewelry what hotel I was staying in what room, it was horrible. ok, this is the end of my own little pity party. I'm sorry if I offended anyone, but I would be happy to hear from anyone. I know I am not alone and tho it is little comfort, it is when I am not so pitful as I am today. I got this when I was 40; lost my underwater dive career in film and photography, my friends and some family and now my 76 year old mother is complaining of the same symptoms. Drs. told me I was too young to have it. Now my research tells me infants can get it. So drs. don't know everything. But it would be nice if they would treat us better.