Quote:
Originally Posted by massageSA
I had an increase of Trileptal 3 weeks ago. Did fine til last week. Every day I have been getting worse. I am having a very bad reaction to the increase. I go see the doc 4 days ago when it started and he says it's not the med increase. I went to GYN and regular doc and there is nothing wrong with me. Back to square 1 again it's the meds and now I'm ****** at my neuro for not helping me. So I'm stepping it down to what I was taking befor without him. I could've slapped him. I don't think he was listening when I told him my symptoms. Cold sensation inside my mouth,freezing hands, hair is breaking like crazy, woman problems I don't care to mention,tightness in my chest,extreme muscle weakness......What the Bleep else could it be. He's crazy I tell u.
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In the 8 years I had TN, I tried so many medications I can't count them; then, the mother of them all, an MVD. Now I have Anesthesia Dolorosa. It is not worth the risk, i promise. At Mary Bird Perkins Cancer Center they are doing a radiation treatment called Stereotactic Radiosurgery similar to gamma knife, but more linear from what I can comprehend. Tho it did not work for me, I don't think it harmed me. Six months later, after at least 4-6 Neurosurgeons told me not to have an MVD; my husband convinced me it was worth trying. Grasping at straws and got poked in the eye with the needle (metaphorically speaking); now instead of my jaw hurting, my eye, my cheek, my eyebrow? Take it easy; I find ice works well for me. But now I don't think drs. realize they take an oath to do no harm... yet, they will take risks. My doctor said, when he thought I couldn't hear him, that's what my ex has. Why do you think she got the house? Be very careful. Research everything. b4 u can do it. Research the people too. How many have they done; how many were successful? Try to figure out if they are lying or not as well. No place to run to...nowhere to hide.