Mary, My opinion is to get a second opinion. Not that his opinion is wrong but when you are dealing with this kind of specialized "problem," you should get a 2nd opinion. You are not putting your doctor down by doing so. You are respecting the disease state by doing it. And more than one disease can cause that denvervation.

I'm sorry, Mary. If you indeed have MG that badly, then you should be going somewhere like Cleveland Clinic, Washington University in St. Louis, MO or Mayo. Somewhere that has more info on all of this.

What a kick in the head. I'm sorry if you have a progressive kind of MG. Did they say what kind of nerve is degenerating? Did you get a copy of the reports? If not, please do!

I hope you get relief from the IVIG and Pred. At least your doctor is being aggressive and giving you good care.

Annie